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MPN Breakfast 2021
At AOP Health, we have been contributing to research on myeloproliferative neoplasms (MPNs) for many years. On September 8th – the 10th Annual MPN Awareness Day – we especially want to help raise awareness for MPNs, as we believe that informing, connecting and advocating for those who are affected and involved is crucial for the well-being of patients.
AOP Health donates medication and makes a financial contribution to support the relief efforts in Ukraine
Rare disease pioneer AOP Health takes over two health care companies strengthening its position in Europe as well as Austria as a research- and business hub.
"From the beginning, it was our priority to preserve all existing jobs and we have done just that. By developing innovative therapies and a broader territorial presence, we are convinced that we will continue to generate significant growth!"
“I wanted to experience the joy of living and have positive thoughts again. I found various means of helping myself and would like to share this experience with other people.”
Narcolepsy Awareness Day, Sep 22, 2020
Narcolepsy is a rare lifelong neurological disorder that affects the natural cycles of sleeping and waking. It is characterized by excessive sleepiness during the day. This rare disease affects 2–5 out of every 10,000 people. No cure of the disease is currently possible. Therefore the treatment concentrates on relieving the symptoms as far as possible.
Huntington’s Disease Awareness May, 2020
"If you get diagnosed do not hide your head in the sand. Stay open, positive and keep up the hope for a cure. It is important to go on with regular life as long as possible, for example to continue working, meeting friends and family, having hobbies! Such non-medical treatments as regular exercising, physiotherapy, logotherapy and massage etc also have a positive impact!"
PH Awareness Day May 5, 2020
"The time taken to establish the correct diagnosis of chronic thromboembolic pulmonary hypertension is on average about 14 months. However, the disease process starts much earlier - at a time when nobody has any idea about pulmonary hypertension. I know of one case that took 30 years to turn into a manifested disease!"
MPN Awareness Day on Sep 12, 2019
"MPNs is a chronic haematological disease group caused by a stem-cell disorder."
Photos and Infographs
Infograph: Integrated care for rare diseasesBridging the gap to improve the lives of 30 million people in Europe.Infograph: Juggling care and daily lifeThe balancing act of the rare disease community.Rare diseases seriously impact everyday life.
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Head of Corporate Communications
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